The Limits of Thinking Like a Doctor

There is nothing that gets my advocacy juices flowing than hearing a doctor tell a patient, I don't know what the problem is, we've done the tests and there is nothing else I can do for you.  For some people, it is a devastating moment when no answers are available and the symptoms are worsening or debilitating.  I have many clients who tell me this story.  Here is one example.

My client is a  44 years old male, who has an undiagnosed neurological disorder that has him in a wheelchair.  It started as dizziness 2.5 years ago, a common complaint but progressed to a debilitating illness.  He can't work, play with his son, walk or see well.  The early neurologist did standard tests and after a time said you have a neurological disorder of unknown origin.  He finally saw a neurologist in a major city who proceeded to suggestion possible diagnosis , did a work up, tried some treatments and then hit the wall.  There was still no diagnosis but a fine tuning of what was known and some medication to control symptoms.  He said to my client, there was nothing else to do.
.
What had actually happened was the doctor had reached his limit of available resources of diagnostic tests and treatments.  There is a syndrome I am finding in medicine that doctors and nurse practitioners are lacking in creative "out side the box "thinking.  Standard of care and evidence based politically correct thinking demand only linear thinking  in order to adhere to the guidelines.  Evidence, in philosophical terms, is all findings that support the way we think and behave.  If the client presents any other evidence or options it is merely their opinion.  Any creative thinking is therefore deemed out side the box or not valid.  In other words, doctors have trouble thinking outside the box because the medical profession is the box.  

 Out side the box thinking does not mean trying some crazy radical alternative therapy.  It can be as simple as seeking out the leading national researcher or specialist and either consulting or getting an appointment.  Dare I put forth that egos come into play when this option is ignored?  Is it difficult for a doctor or nurse practitioner to admit they are not going to be the problem solver?  Is it easier to say to client there is nothing else for you and live with it or would it be possible to really put your clients options first?   I do know sometimes there is nothing else but lets try!

My role as an advocate is to leave no stone unturned.  Find solutions, if possible, when medical professionals close the door and say I will see you three to six months.  I wish this client was an anomaly but it is not the case.  It is the norm.  Our expectations with the medical profession needs to be readjusted.  We have to know to look out for our best interests and not expect a medical professional to be as participatory as in the past.  It is the new medical culture and both sides must adjust.  Doctors and nurse practitioners need to accept the new and changing role of the patient to the empowered patient.  Patients need to be informed and willing to think outside the box when necessary.  Patients should not feel guilty for not agreeing with the doctor or seeking other options.  There needs to be collaboration.

My client is going to a specialty center where the leading doctor in his field nationally practices, where the state of the art diagnostic radiological and lab tests are available.   As an advocate, I was able use my resources and get him an appointment.  His doctors were lukewarm in helping to get the necessary information to the center.  It took my client's wife sobbing in the doctors office and expressing frustration at the lack of response to get what was required pre visit.   There are always lots of excuses but three weeks post request, does it have to be this way?

Patient Advocacy was started because of these situations.  The medical profession still roles their eyes at the thought.  There is often an icy breeze when I say I am a nurse practitioner and a patient advocate.  The most common response is why does this person need an advocate?  I rest my case.

  

 

What did you think of this article?




Trackbacks
  • No trackbacks exist for this post.
Comments
  • No comments exist for this post.
Leave a comment

Submitted comments are subject to moderation before being displayed.

 Name

 Email (will not be published)

 Website

Your comment is 0 characters limited to 3000 characters.